AOSupport

So...I posted on here a while back, 'Blisters on the feet no matter what shoes I try on her,' a while back . I have taken her to so many Dr's now and the last one we saw was a podiatrist. She did not think it was blisters. They were not on the 'weight barring' parts of her feet, and looked like nothing she had ever seen before. She looked in to AOS skin conditions and decied it was Cutis Marmorata Telangietca Congentica. Now, Taylor had a VERY mild case of mottled skin on her legs and tummy when she was born, but it cleard up around 9 months old. Dose anyone eles out there with AOS have these 'blister' looking bumps on them?? Did it develope aropund the age of 2?? CMTC pictures that I found do not match the bumps on Tay Tay's feet.  How did the Dr come up with this?

 Im so confused....any help would be great!:/

That reminds me, I have been meaning to take some pictures of Kyle's toe blisters to post. Do you have any good pictures of the 'blisters' you can post? Kyle has always had them, since he was born so I am not sure if they would be the same thing or not. His pediatrician isn't quite sure what they are. They are not blisters though but I don't have anything better to call them. I know my doc mentioned before that perhaps since his toes aren't completely formed all the way there are "pockets" in his toes that keep getting filled with gunk. They hurt him if you push on them but luckily is doesn't bug him too much when he walks as they are on the tops and ends and there isn't a lot of pressure on them. I am not sure if it is CMTC or not. And to be honest I really don't even know what CMTC is or means or affects (besides mottled skin). It seems to be a bit different when it is combined with AOS. It does seem like the CMTC makes healing slow and causes poor circulation which I could see maybe to blame. My pediatrician mentioned I may want to eventually take him to a pediatric podiatrist to have them looked at. We dig them out and leave a gaping hole, then they take a year to heal while starting to form again and then we dig them out again. Tell me more about Taylors?

Sorry I am a bit late to this one! Collin has one spot on his side that was a brown patch when he was born and blisters up about every 2-3 months or so. It has since he was born and he'll be 4 in a couple weeks. It's the craziest thing. It hasn't seemed to grow or change, but it still definitely blisters on and off even though doctors thought it might stop as he gets older.

Becca

my daughter was born with what appeared to be a small piece of bone protruding through the skin on the tip of her big toe. However x-rays showed it wasnt bone and no health professional could explain what it was, so my guess was that it was just a random piece of toenail (she has little to no nail on that toe) . However when she was about 12 months old the whole area became inflamed and tender to touch with a blister of what looked like pus (sorry no nice way to say that). since then we seem to go through about a 6 month cycle of it getting infamed and sore then drying out then re-appearing again. I'm not sure if that is the kind of "blister" that you are all referring to...but if anyones podiatrist etc can shed any light on what it is do let us know.... as once we reach school age, going with out shoes when her toe is sore will no doubt be problematic :-)